Portal de Bullas
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The Councillor for Social Services, Chari Martinez, recently held a meeting with the coordinator of the Association of Rare Diseases D'Genes in the Northwest region, Pascual Donate.
At this meeting, the coordinator announced the D'Genes work developed at its headquarters and the Multidisciplinary Center "Celia Carrion Perez de Tudela" located in Totana, as well as services to be paid in the new headquarters Northwest region.
Also, the coordinator of D'Genes in the region informed of all activities that the partnership develops, the awareness and visibility of rare diseases and to raise funds to deal with the services provided.
Meanwhile, the council showed their support and collaboration with D'Genes in everything that involves improving the quality of life of those affected by rare diseases in this area.
Source: Ayuntamiento de Bullas
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